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Box 1 List of sociodemographic and clinical variables collected for the three target groups

From: Validation of the European Oncology toolkit for the self-assessment of Quality of Life (EUonQoL-Kit) in cancer patients and survivors: study protocol of a pan European survey

Variables

Sociodemographic

Age

Country of birth

Sex and gender identity

Place of residence

Living situation

Members in household

Education level

Main activity status (prior to cancer diagnosis and current)

Financial situation (total expenses in relation to household income, ability to keep up with household and medical bills)

Presence of disabilities

Lifestyle behaviour (smoking, drinking, diet, physical activity)

Importance of religious belief/spirituality

Clinical

Primary cancer diagnosis (ICD-10 code and date)a

Stage of cancer diseasea

Presence of local relapse (date)b

Presence of metastases (site and date)b

ECOG performance status

Charlson Comorbidity Index

Tumour-directed treatment (date of last treatment, type, line)a

Pharmacological treatment for psychiatric disorders, pain, and other physical symptoms

Weight/Height, and duration and amount of involuntary weight loss (if any)

Follow-up frequencyc

Followed by a specialized palliative care teamb

Followed by a psycho-oncologist

Setting of careb

  1. aCurrent, for Groups A and C, previous for Group B
  2. bGroups A and C only
  3. cGroup B only